Lisa first heard about Raising Special Kids just after her daughter was born. Without knowing what was behind her daughter's medical condition, she wasn't sure what sort of help to ask for. But Lisa appreciated the support she received to discuss new developments, and to talk about her questions.
With her daughter now in high school, Lisa reflects on the challenges of raising a child with a very rare condition. "We did not even have a diagnosis until she was 10 years old," said Lisa. "There was no specific support group for me to join, but I knew that Raising Special Kids was always there for me."
It took a lot of research, visits to different doctors in several states, and dogged persistence to discover what was causing her daughter's medical problems. Lisa explained, "When you are going through this struggle, you just feel isolated, and you don't know where to turn. It's so hard because your friends and family want to help, but they don't know what to do, they haven't walked in your shoes. It was good to have other parents I could talk with and share."
"I always feel welcomed--like part of the family," she added.