Support Groups

The following is a listing of support groups or agencies that sponsor groups for families and individuals with disabilities and special health needs.

We highly recommend calling a group you are interested in prior to attending a meeting to be sure it is still active, and to confirm the dates, times and locations of the groups.

Albanism ADD/ADHD Adoption AIDS/HIV
Allergies Angelman Syndrome Asperger Syndrome Autism
Asthma Brain Injury Blind/Vision Impaired Cystic Fibrosis
Deaf/Hard of Hearing Down Syndrome Dyslexia Epilepsy
Fragile X Syndrome Grief/Loss Heart Conditions Hydrocephalus
Limb Difference Liver Little People Mental Health
Multiples Neurofibromatosis
Osteogenesis Imperfecta
Prematurity
Scoliosis Siblings Special Needs Tourette Syndrome
Fatherhood

Additional groups may be found at Community Information & Referral Services by visiting www.cir.org or calling 877-211-8661.


Albinism

NOAH - National Organization for Albinism and Hypopigmentation

www.albanism.org
In Arizona Contact: Cyndy Bensema, 602-995-1036


ADD/ADHD

North West Valley CHADD

(Maricopa County)
Acacia Elementary School (Media Center)
3021 W Evans Dr. in Phoenix
Date: Fourth Tuesday of the Month
7:00pm


Chino Valley ADD/ADHD Parent Support Group

(Yavapai County)
Chino Valley: 1704 Palo Verde Dr
Date: 2nd Monday of each month
Time: 7:00-8:30pm
Contact: Marcia T. Brehmer, 928-636-5160

Prescott ADD/ADHD Parent Support Group

212 S. Marina ( 4CCDD office gray house across from Public Library)
Date: 3rd Monday of each month
Time: 6:30-8:00pm
Contact: Marcia T. Brehmer, 928-636-5160
Child Care: Free, but must pre-register prior to meeting


Adoption of Children with Special Needs

Aid to Adoption of Special Kids (AASK)
2320 N. 20th Street
Phoenix, AZ 85006
(602) 254-2275 / 1-800-568-2614

  • For Foster Care Licensure/Adoption Certificate
    602.930.4900 (www.aask-az.org)
  • For Home & Community Based Services (HCBS)
    602.254.2275 ext 4407 (www.aaskforhcbs.org) or 1.800.370.2275

AIDS/HIV

Southwest Center for HIV/AIDS

1144 East McDowell Road
Suite 200
Phoenix, AZ 85006

(602) 307-5330
http://swhiv.org

View website's calendar for meetings


Allergies

Phoenix Allergy Network - an educational food allergy support group for families.
Come meet other families living with severe food allergies.
Support. Educate. Advocate for Change.
Visit www.phoenixallergynetwork.org for meeting dates and location.

Arizona Food Allergy Alliance
The Arizona Food Allergy Alliance is a support group dedicated to improving the lives of those affected by food allergy in the State of Arizona. We sustain the common interests of members through education, support, and advocacy. It is our goal to bring awareness, understanding, and safety within families and communities by providing educational resources, personal networking experiences, and opportunities for community involvement. Thus, we hope every person that visits will connect, learn, and succeed.
www.arizonafoodallergy.org


Angelman Syndrome

Angelman Syndrome Foundation Inc.

www.angelman.org



Asperger Syndrome

Asperger Parent Network
For parents in the Greater Phoenix area who have a child or teen with Asperger Syndrome or related disorder.
Meets monthly in various locations
Contact: Carolyn Warden at 480-759-6329 or Annette Wilkes at 480-855-3402
HelpASAP online listserve - Parent Support Group for parents of children with autism
To join email marlene@kenyonzoo.com or call 623-879-7577.

Phoenix High Functioning Autism/Asperger Family Network
(affectionately known as Phoenix HFA)
Support group for both kids and parents-we share challenges, successes and info!
4512 E Juniper Avenue, Phoenix, AZ 85032
Email: hfautism@cox.net
602.492.8033 (leave message and we will get back to you)

www.phoenixautism.com


Autism

East Valley Autism Support Group for Spanish-Speakers (Español)

2nd Tuesday of every month.
Contact: Alberto Serpias 480-831-1009

Autism Society of Greater Phoenix
www.phxautism.org
Parents Monthly Support Group
Coco's Restaurant at Paradise Valley Mall, 4515 E. Cactus Rd., Phoenix, AZ 85032-7702
4th Tuesday of the month at 7:00 pm
For more information contact Cynthia Macluskie at 480-940-1093 or cynthia.marksmom@cox.net.

West Valley Autism Support Meetings
Every 2nd Tuesday of the month, 7-9pm
Prayer Center - New Life Community Church
8155 W Thunderbird Rd., Peoria AZ 85381
Contact info: Shelly Vinsant, shellyvin@cox.net, 623-572-5289, 623-261-9385

AZ ASSIST: Autism Spectrum Support, Information & Strategies for Transition
Focus is on the transition issues students with HFA & Asperger’s face as they enter the adult world: Career, Independent Living, Social & Recreation, and Housing
www.azassist.wetpaint.com

Kids With Autism Can

An Arizona not for profit organization, strives to create a community of families with children on the Autism Spectrum. http://kidswithautismcan.org/


Asthma

Asthma in Children and Adolescents Knowledge Path
http://www.mchlibrary.info/KnowledgePaths/kp_asthma.html


Brain Injury

Brain Injury Association of Arizona
http://www.biaaz.org/bia/supportGroups.aspx.


Blind/Vision Impaired

Foundation for Blind Children
1235 East Harmont Drive, Phoenix, AZ 85020-3864
Local Telephone: (602) 331-1470

Arizona Association for Parents of the Visually Impaired
Phone: 602-331-1470

www.seeitourway.org
E-mail: info@seeitourway.org


Cystic Fibrosis

CF Parent's Group
Phoenix Children's Hospital
6-8:00pm
Third Wednesday of every month.
Contact Barbara Bush, CF 602-546-0288.


Deaf or Hard of Hearing

Hands and Voices
http://handsandvoices.org
http://azhv.org


Down Syndrome

DSNetwork
Information and networking opportunities for families of children with Down Syndrome
http://www.dsnetworkaz.org/ or call 480.759.9150.

Sharing Down Syndrome
Family support for parents and families of people with Down Syndrome
Affiliated with the National Down Syndrome Congress and National Down Syndrome Society.
Contact information:
Sharing Down Syndrome Arizona Inc., 745 N. Gilbert Rd. #124, PMB 273, Gilbert, AZ
Phone: (480) 926-6500
Website: www.sharingds.org
E-mail: gina@sharingds.org


Dyslexia

Dyslexia Support Group

Every 3rd Thursday of the month.
Please contact Meriah Houser for information. 602-696-3305 or Email-love4reading@hotmail.com


Epilepsy

Flagstaff Parent Support Group
Contact: Lisa Kemp, 520-774-4617

Phoenix Parent Support Group
Phoenix Children's Hospital, 909 E Brill
Last Wednesday of the month 7:00 pm
602-406-3581 (Call to verify meeting time and place)

East Valley Epileptic
3rd Thursday each month

Contact Epilepsy Foundation for more information (602) 406-3581


Fatherhood

Drop-In Support Group: 6:00 – 7:30pm every 1st & 3rd Wed. of each month
Dads with Special Needs Children Discussion Group: 6:00 – 7:30pm every 2nd & 4th Wed. of each month.

To learn more, please contact Neil Tift at 480.834.9424.


Fragile X Syndrome

Fragile X Families of Phoenix

(623) 217-3308

fxfamiliesofphx@gmail.com

http://www.fragilex.org/community/links-support-network/fragile-x-famlies-of-phoenix/


Grief/Loss Support

Arizona SIDS Alliance
Support Meetings & Newsletters
Phoenix Chapter: 602-433-SIDS
Tucson Chapter: 520-297-6013

The Compassionate Friends (TCF) Inc.
National: 630-990-0010, www.compassionatefriends.org
Phoenix Metro area chapter: http://www.tcfphoenix.org/
Offers a Phone Friends program, personal letter responses, monthly support groups, newsletter.


MISS Foundation Support Group
Loss of Child with Special Needs
7634 W. Camelback Road at
Camelback Community Church, Room 208
Second Thursday of each month at 6:30 pm
www.missfoundation.org
contact kyliesmom@missfoundation.org
602-472-2057


Heart Conditions

Mended Little Hearts

602-345-0674

PhoenixAZ@mendedlittlehearts.org

http://mlhphoenix.weebly.com


Hydrocephalus

Hydrocephalus Association
http://www.hydroassoc.org/


Limb Difference

Special Blessings
Informal meeting held once a month in various family homes.
Contact: Adriane Grimaldi 480-423-3590 or sbaz@cox.net
www.vagrimaldi.com/sb


Liver

PHOENIX

Banner Good Samaritan Medical Center
Sandstone Conference Room
1111 E. McDowell Rd.
Phoenix, AZ 85006

Meets: First Tuesday/Monthly, 6:30 PM

Contact Charlie Thomas, CISW - Julie LaMantia, MSW - Toni Ruiz, MSW or Robin Opp for more information. Phone: 602-839-7000

Carl T. Hayden VA Medical Center
650 E. Indian School Rd.
Phoenix, AZ 85012

Meets: 4th Tuesday/Monthly, 1:00 PM

Contact Libby Evanich, NP for more information. Phone: 602-277-5551, ext: 6129

Focus on Primary Biliary Cirrhosis (PBC)

Mayo Clinic Hospital
5777 E. Mayo Blvd., Room 1-220
Phoenix, AZ 85054

Meets: Meets the 3rd Monday of each month from 5:30 PM Call to confirm attendance.

Contact Shari Ordog for more information. Phone: 602-953-1800

PRESCOTT

Prescott Public Library
"Bump Room" (Main Floor)
Prescott, AZ

Meets: 3rd Wednesday/Monthly, 6:30 PM Call to confirm attendance.

Phone: 928-420-9679

TUCSON

Martha Cooper Branch Library
1377 N. Catalina Ave.
Tucson, AZ 85712

Meets: 1st Thursday of each month (5:30-7pm) Please call 24 hours prior to meeting to confirm attendance.

Contact John Stevens for more information. Phone: 520-881-8382


Little People

AZ LPA – Little People of America - Arizona
http://www.facebook.com/groups/AZLPA

info@lpaonline.org or 1-888-LPA-2001.


Mental Health

Mentally Ill Kids in Distress (MIKID)
2642 East Thomas Road, Phoenix, AZ 85016
(602) 253-1240

http://www.facebook.com/MIKIDarizona

Depressive & Bi-Polar Support Groups

Bi-Polar Bears

Wednesdays 7-9pm
St Luke's Behavioral Health Services
1800 E Van Buren St , Phoenix, AZ

New Dawn

Tuesdays 7-9pm
Presbyterian Service Agency
2255 W. Northern Avenue B-100
Phoenix

Survivors United
5225 N 19th Avenue
Phoenix

Anxiety Disorders Support Groups

Anxiety Support Group
1st & 3rd Wednesday 7-8:30pm
Life Care of Paradise Valley
4065 E Bell Rd, Phoenix

Obsessive Compulsive Disorders (OCD)
2nd & 4th Thursday 7-9pm
Samaritan Behavioral Health Center
7575 E. Earll Dr. Scottsdale

OCD For Adolescents
4th Monday, 7pm
Day Spring United Methodist Church
1365 E Elliot, Tempe


Multiples

Desert Sky Mothers of Multiples
Email: dsmom09@gmail.com
https://www.bigtent.com/groups/dsmom

Mothers of Supertwins
(631) 859-1110
http://www.mostonline.org

Multiple Joys
Email: abcmom@cox.net - Kathleen Anderson
http://multiplejoys.com


Neurofibromatosis

Neurofibromatosis, Inc. Arizona

Phone: 480.945.9650; Email: info@nfarizona.org

http://www.nfarizona.org


OI (Osteogenesis Imperfecta)

Support Group Meetings
When: The last Saturday of each month
Contact for details: Jen Adler 480-668-4754 mesabutterfly46@aol.com or Lauri Alexander 480-833-2112 lauri@digitalswirl.com


Prematurity

NICU Parent Network
Regular meetings at local hospitals
contact Raising Special Kids
602-242-4366 or 1-800-237-3007


Scoliosis

Scoliosis Association - Support Group
Contact Carol Lytle at 480-839-9822 cjlytle@hotmail.com


Siblings of Kids with Special Needs

Sibshops

Workshops for brothers and sisters of children with disabilities or special needs.
Held one Saturday each quarter from 9am - noon.

Cost: $15.00
For more info contact S.E.E.K. Arizona – 480-902-0771


Special Needs

Special Needs Support Group of the North Valley

Information, opportunities for sharing experiences, resources, and advocacy for parents of children with special needs
Meetings are held on the 2nd Tuesday of every month from 6:30 - 8:00 p.m. at the North Valley Regional Library located at 40410 N Gavilan Peak Parkway Anthem, AZ 85086
Contact Kristina Blackledge, Group Facilitator, at 602-402-9510 or via email atkris@azparentadvocate.com.


Tourette's Syndrome

Phoenix Area Support Group

Coordinators: Teri Mendenhall stmendenhall@cox.net and Denise Regeski dregie@msn.com

Website: http://health.groups.yahoo.com/group/tourettesphoenix

Meetings are held from 10am - 12pm on the second Saturday of most months.

Stories

It’s A Good Time To Have Dyslexia

​Meriah Houser is a former teacher, and a lover of books. She was eager to pass on her enthusiasm for reading to her sons, Cole and Maddox. As her boys grew, Meriah discovered that reading was very challenging for them. … KEEP READING

Don't Be Afraid to Ask for Help

Not long ago Aurora Townsend and her family were afraid that she would be unable to follow her dream of attending college to become a Neurobiologist. Aurora has Toxic Encephalopathy and Chronic Inflammatory Response Syndrome–disabilities that cause her body to respond intensely to substances in the environment many of us do not notice. … KEEP READING

​I Felt Like I Could Breathe Again!

When Laurie and her husband adopted Adilynn, they anticipated a few minor medical issues. What they could not have anticipated was the number of hospitalizations, medical procedures and dozens of specialists necessary to meet Adilynn’s medical needs. … KEEP READING

Families Helping Families

Families Assisted
9,057
Parent-to-Parent Matches
379
Professionals trained
2,292
Community Partners
375