Links

CPIR is a national information center that provides information on disabilities and disability related issues, focusing on children and youth, birth to age 26. www.parentcenterhub.org

Disability.gov is the federal government website for comprehensive information on disability programs and services in communities nationwide. The site links to more than 14,000 resources from federal, state and local government agencies; academic institutions; and nonprofit organizations. You can find answers to questions about everything from Social Security benefits to employment to affordable and accessible housing.

New information is added daily across 10 main subject areas – Benefits, Civil Rights, Community Life, Education, Emergency Preparedness, Employment, Health, Housing, Technology andTransportation.

Dental

National Maternal & Child Oral Health Resource Center
http://www.mchoralhealth.org/publications.html

American Academy of Pediatrics Children’s Oral Health
http://www2.aap.org/oralhealth/

University of Washington School of Dentistry
Factsheets for different diagnoses for dental guidance for parents, medical, and oral health providers
http://dental.washington.edu/oral-medicine/special-needs/patients-with-special-needs/

Health

Bright Futures materials for families are available on a wide range of mental, physical and emotional health issues for children from the prenatal months through age 21. And health professionals have found that providing Bright Futures materials promotes positive interaction with the families whose children are in their care. http://brightfutures.aap.org/Family_Resources.html

HealthCare.gov - Affordable Care Act

Topics Include:

  • Finding Insurance Options
  • Prepare for the Health Insurance Marketplace
  • Health Insurance Basics
  • The Health Care Law & You
  • Prevention, Wellness & Comparing Providers

Arizona Children’s Rehabilitative Services
http://www.dmgcrs.org/

Transition

United States Department of Labor Office of Disability Employment Policy

This series of videos addresses various topics that will help young people with disabilities navigate the job search process. The videos star young professionals that either have disabilities themselves or work with college students with disabilities. These videos are intended to provide you with real-life information and personal experiences. http://www.dol.gov/odep/wrp/Videos.htm

Your Job Search Video Topics:

  • Your Job Search Effective Resumes
  • Your Job Search Using Social Media
  • Your Job Search Effective Techniques
  • Your Job Search
  • Paid vs. Unpaid Internships and Compensation
  • Disability Disclosure and Accommodations Requests
  • Preparing for an Internship
  • Skills for Success
  • Professional Attire
  • On the Job Etiquette
  • Informational Interview
  • Time and Stress Management
  • Lessons Learned
  • Lessons for the Future

Got Transition is the National Health Care Transition Center that aims to support the best possible transitions from pediatric to adult models of health care for youth with and without special health care needs. http://www.gottransition.org/

Health Care Transition Workbooks (Youth and Parents versions)
http://hctransitions.ichp.ufl.edu/ddcouncil/resources_ch1.php
Three different workbooks (ages 12-14, 15-17, and 18+) for youth and their families to separately assess how prepared they are for transition, then to work together to create a healthcare transition plan. From Florida’s Developmental Disabilities Council.

Online Transition Training for Families and Healthcare Professionals
http://hctransitions.ichp.ufl.edu/ddcouncil/training_home.php
Five chapters of video clips and related resources to help families and providers develop and implement successful healthcare transition plans for youth with special needs. From Florida’s Developmental Disabilities Council.

Kids As Self Advocates (KASA)
http://www.fvkasa.org/resources/health.html

Parenting

Parenting After Trauma: Understanding Your Child’s Needs
A Guide for Foster and Adoptive Parents http://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/healthy-foster-care-america/Documents/FamilyHandout.pdf

PEAK’s Shift Transition Project Webinar Series: In this series, hear motivating stories about how to advocate as youth with disabilities and as parents of youth with disabilities, plus much more! 


Stories

It’s A Good Time To Have Dyslexia

​Meriah Houser is a former teacher, and a lover of books. She was eager to pass on her enthusiasm for reading to her sons, Cole and Maddox. As her boys grew, Meriah discovered that reading was very challenging for them. … KEEP READING

Don't Be Afraid to Ask for Help

Not long ago Aurora Townsend and her family were afraid that she would be unable to follow her dream of attending college to become a Neurobiologist. Aurora has Toxic Encephalopathy and Chronic Inflammatory Response Syndrome–disabilities that cause her body to respond intensely to substances in the environment many of us do not notice. … KEEP READING

​I Felt Like I Could Breathe Again!

When Laurie and her husband adopted Adilynn, they anticipated a few minor medical issues. What they could not have anticipated was the number of hospitalizations, medical procedures and dozens of specialists necessary to meet Adilynn’s medical needs. … KEEP READING

Families Helping Families

Families Assisted
9,057
Parent-to-Parent Matches
379
Professionals trained
2,292
Community Partners
375